It is Inspirational Women Wednesday! This week we are going to be talking about the inspirational Failure to Thrive No More. If you want to check out my previous post about Maria Montessori you can read it here.
“But with differently-abled children, you don’t have this perfect and complete manual on how to parent. With a differently-abled child, you write a manual as days and weeks go by. YOU figure out what’s best for your child, and what works for your child.” -Jennie, Failure to Thrive No More
Inspirational Failure to Thrive No More
This wonderful Mama you are about to “meet” is so inspiring and is also a fellow blogger. I have never met her in person, but this girl encourages and inspires me. I love that she is so honest about herself and her family.
Jennie is a military spouse, fitness loving, mom of two boys. She is a Special Needs Advocate since learning about her son’s Dyrk1a Syndrome diagnosis in April 2018. Failure To Thrive No More is a great inspirational stop, especially if you need to be reminded that you aren’t alone in your mom journey with a special needs child. Jennie will leave you feeling like you can conquer anything life throws at you and you won’t be able to not fall in love with her beautiful little boys. I root for Jaxson daily and love getting to hear about his journey. Failure To Thrive No More is a must for parents that need encouragement for their special needs children. I am proud to call this girl my friend and I am beyond grateful to have found her in this crazy blogging world.
My Interview with Failure to Thrive No More
Please introduce yourself and your blog to my readers.
Hello! My name is Jennifer and I am the woman behind Failure to Thrive No More. The reason I started to blog was to use it as an outlet for my stress and frustrations. Our son Jaxson was diagnosed with a rare chromosome disorder and I wanted to take our story and share it with the world. I hoped to help another family struggling to find answers, let them know that there is hope. I have also included my love for health and fitness, our life as a military family, and more.
When did you begin your blogging journey?
I began my blogging journey in June 2018, can’t believe it’ll be almost a year! I’m definitely hooked!
Can you describe your blogging style?
I would have to say that my blogging style is humor. I love to write and include funny things in my post!
What was your greatest failure and how did you overcome it?
My greatest failure, that’s a good one. Definitely my affiliate marketing skills. I signed up for Share a Sale thinking it would be easy, turns out it wasn’t. I’m slowly getting a little better at it, I am reading Carly’s affiliate marketing program and hope to be even more successful in it this year.
What do you do in your spare time?
I do a lot of lounging around on the couch catching up on my Investigation Discovery shows or Netflix. When I’m not doing that you can find me in the garage working out, studying for class, and hanging out with the boys.
What are the biggest trends in your niche?
Currently, a lot of healthy recipes and workout posts seem to be doing quite well in my niche. I recently shared a recipe on Chocolate Banana Egg White Oatmeal and Peanut Butter Egg White Oatmeal–they’re doing great.
What are some things people don’t know about you?
I am half Japanese and I speak Japanese! I grew up on a little island called Okinawa and I miss it terribly and I may be biased but the food and the culture is just so awesome, I can’t wait to go home and visit. Met my husband James there and we fell in love and got married within three months–crazy I know, but when you know you know. I use to draw a lot growing up, mostly anime and I was in the Marine Corps JROTC Program for FOUR years, haha.
What does a typical day in your life look like?
My typical day starts around 0630 when I wake our oldest up for school, I am trying to get up earlier than that but it hasn’t happened yet. We take JJ to the bus stop around 0730 where he’s gone until 1645. Jaxson has Occupational Therapy and Speech Therapy on Monday and Thursday mornings. He has Physical Therapy every Wednesdays. Other than that I’m generally relaxing on the couch from a sleepless night (thanks to Jaxson), catching up on shows, doing homework, or working on my blog until I pick up JJ at the bus stop. I usually like to work out in the mornings but lately, I’ve been doing it when our oldest gets home since he loves the garage.
Best Mama Hack?
Best Mama hack? I use our kitchen scissors to slice up pizza, and other big foods for Jaxson. He still has trouble feeding so I want to make the pieces as small as possible. I love that hack!
Tell us about your sweet Jaxson. Any resources that you would like to include?
Our son Jaxson has kept us on our toes since he was in my belly. At 20 weeks we found he had a two vessel cord so we were sent to a Perinatal Specialist where they monitored me throughout the pregnancy. Growth scans frequently, non-stress tests frequently, he sure kept us busy. When Jaxson was born on February 22nd, 2017 we knew he was going to continue to keep us on our toes. He lost a pound within two days of leaving the hospital, screamed, cried, couldn’t eat well. We found that he had a terrible suck and swallow and started feeding therapy.
When he was 6 months old he was diagnosed with an airway defect, Laryngomalacia. At 8 months we were sent to Physical therapy because he couldn’t roll or sit up. We were sent to a Genetics team a few hours away to find answers, and in December we opted to do the WGS (genetic testing). April 2018 we got a phone call that Jaxson has the Dyrk1a Syndrome, it’s a deletion of the Dyrk1a gene within the 21st Chromosome. I know, a lot to take in. I was both happy and sad, happy we got answers and sad for what’s to come. He was going to have a challenging life but I know he will do his best to overcome it. Below are some useful information about Laryngomalacia and Dyrk1a Syndrome.
Who inspires you and why?
My boys inspire me daily—particularly our Dyrk1a Warrior Jaxson. When we received his diagnosis we thought the worse, but he surprised many. He continues to defy the odds—day in, day out. My oldest son inspires me as well, despite all that happened at the beginning of Jaxson’s life he persevered. He’s so smart and I am amazed at how much he learns. They both inspire me to do better and continue my dream of sharing our story.
Thank you, Failure To Thrive No More!
I also want to include a few posts from Jennifer that I think you would really enjoy, especially if you are a Mama to a special needs child.
Jaxson Update: He Keeps Us On Our Toes!
You: An Open Letter To A Medical Mama
I Took a Little Longer
You can find Jennifer and Failure To Thrive No More on the following social media. <3
“I soaked in the shower for a good fifteen minutes. Listening to the sound of water hitting my back, and feeling a bit guilty. I felt a little relief to have time to myself but couldn’t help but feel a little ashamed. I stood there as the water continued to trickle, and tried to relax.” I Took A Little Longer, Failure to Thrive No More
“But those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.” -Isaiah 40:31